Connecting CF Families in the Greater Orlando Area

What is CF Orlando?

CF Orlando was created by parents of children with cystic fibrosis. They felt isolated by the disease and the fact that they had no way to reach out and meet other parents dealing with the same issues. CF Orlando is a way for families living with CF to connect with each other: communicate their hopes, fears, concerns and questions in a safe, loving environment. When you log on to CF Orlando, you will know that the pictures you see and the stories you read are from your neighbors, those living in Central Florida.

What is Cystic Fibrosis?

Cystic fibrosis is a genetic chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. A defective gene and its protein cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Currently, the average life expectancy of a patient living with CF is 38 years.

Emily just turned 5 years old! She enjoys school, reading, riding her bike and playing with her little sister Avery.

Our next CF Parents' Night Out has been scheduled for Thursday, July 2 at 7:00 PM. We will be meeting at the Liam Fitzpatricks Irish Pub in Lake Mary. The address is 951 Market Promenade Ave. If you have any questions or need directions, please email kathryn@cforlando.org. We hope to see you there!

You can also join us on Facebook!
Click on Groups and search for Central Florida CF Parents.