What is CF Orlando?
CF Orlando was created by parents of children with cystic fibrosis. They felt isolated by the disease and the fact
that they had no way to reach out and meet other parents dealing with the same issues. CF Orlando is a way for families living
with CF to connect with each other: communicate their hopes, fears, concerns and questions in a safe, loving environment.
When you log on to CF Orlando, you will know that the pictures you see and the stories you read are from your neighbors, those
living in Central Florida.
What is Cystic Fibrosis?
Cystic fibrosis is a genetic chronic disease that affects
the lungs and digestive system of about 30,000 children and adults in the United States. A defective gene and its protein
cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb
food.
In the 1950s, few
children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further
enhanced and extended life for children and adults with CF. Currently, the average life expectancy of a patient living with
CF is 38 years.